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Editorial| Volume 128, PA1-A2, July 2018

Life after cardiac arrest: The importance of engaging with the ‘forgotten patient’

      Out-of-hospital cardiac arrest (OHCA) is a significant cause of death worldwide; [
      • Berdowski J.
      • Berg R.A.
      • Tijssen J.G.P.
      • Koster R.W.
      Global incidences of out-of-hospital cardiac arrest and survival rates: systematic review of 67 prospective studies.
      ] although past efforts have nearly doubled survival rates, the current average mortality still remains between 80 and 90% [
      • Daya M.R.
      • Schmicker R.H.
      • Zive D.M.
      • Rea T.D.
      • Nichol G.
      • Buick J.E.
      • et al.
      Resuscitation Outcomes Consortium Investigators. Out-of-hospital cardiac arrest survival improving over time: results from the Resuscitation Outcomes Consortium (ROC).
      ]. Up to 85% of all cardiac arrests occur in homes [
      • Hostler D.
      • Thomas E.G.
      • Emerson S.S.
      • Christenson J.
      • Stiell I.G.
      • Rittenberger J.C.
      • et al.
      Resuscitation outcomes consortium investigators. Increased survival after EMS witnessed cardiac arrest. Observations from the Resuscitation Outcomes Consortium (ROC) epistry-cardiac arrest.
      ] which means that, unlike many other critical illnesses, family members, and partners’ or significant others often witness the collapse or have to perform CPR on their friend or loved one. The traumatic burden associated with such a life altering event can be significant, resulting in unique psychosocial needs both for survivors and those who witness or perform CPR. Whilst the survivor may have very little memory of the cardiac event, the partner or caregiver may struggle to deal with the fear, anxiety and guilt associated with the arrest, CPR provision, and subsequent care upon discharge of their loved ones from hospital [
      • Weslien M.
      • Nilstun T.
      • Lundqvist A.
      • Fridlund B.
      When the unreal becomes real: family members' experiences of cardiac arrest.
      ,
      • Pusswald G.
      • Fertl E.
      • Faltl M.
      • Auff E.
      Neurological rehabilitation of severely disabled cardiac arrest survivors. Part II. Life situation of patients and families after treatment.
      ,
      • Van Wijnen H.
      • Rasquin S.
      • van Heugten C.
      • Verbunt J.
      • Moulaert V.
      The impact of cardiac arrest on the long-term wellbeing and caregiver burden of family caregivers: a prospective cohort study.
      ,
      • Wallin E.
      • Larsson I.
      • Rubertsson S.
      • Kristoferzon M.
      Relatives' experiences of everyday life six months after hypothermia treatment of a significant other′s cardiac arrest.
      ]. This often makes the caregiver a ‘forgotten patient’ [
      • Dainty K.N.
      • Morrison L.J.
      • Seaton M.B.
      The bystander support network: building a resource for the forgotten patient.
      ]. A growing literature has begun to expose the high levels of stress, anxiety, anger and confusion experienced by the caregivers of survivors within the first 12-months post-arrest [
      • Van Wijnen H.
      • Rasquin S.
      • van Heugten C.
      • Verbunt J.
      • Moulaert V.
      The impact of cardiac arrest on the long-term wellbeing and caregiver burden of family caregivers: a prospective cohort study.
      ,
      • Wallin E.
      • Larsson I.
      • Rubertsson S.
      • Kristoferzon M.
      Relatives' experiences of everyday life six months after hypothermia treatment of a significant other′s cardiac arrest.
      ,
      • Wilder Schaaf K.P.
      • Artman L.K.
      • Peberdy M.A.
      • Walker W.C.
      • Ornato J.P.
      • Gossip M.R.
      • et al.
      Virginia Commonwealth University ARCTIC Investigators. Anxiety, depression, and PTSD following cardiac arrest: a systematic review of the literature.
      ]. A recent study suggests that significant post-traumatic stress continues in a significant percentage of caregivers up to 2-years post event [
      • Van't Wout Hoflandt J.
      • Moulaert V.
      • van Heugten C.
      • Verbunt J.
      Long-term quality of life of caregivers of cardiac arrest survivors and the impact of witnessing a cardiac event of a close relative.
      ]. Although the general quality of life of caregivers at 2-years is similar to that of the general population, levels of subjective, post-traumatic stress and fatigue are higher. Not surprisingly, levels of post-traumatic stress are greater for caregivers who witnessed the cardiac event or performed CPR than for those who did not witness the event. However, even for this latter group, levels of post-traumatic stress remain higher than that observed in the general population at 2-years.
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